|
CLCPA:
Resources
 Demographic
Data
https://perfdata.hrsa.gov/mchb/mchreports/Search/program/prgsch01.asp
Maternal and Child Health Bureau—State Priority Health
Areas (by state and region)
http://www.childhealthdata.org/content/Default.aspx
Data Resource Center for Child & Adolescent Health (home
of searchable databases on the National
Survey of Children’s Health and on the National Survey
of Children with Special Health Care Needs)
http://factfinder.census.gov/home/saff/main.html?_lang=en&_ts=
U.S. Census Bureau—American FactFinder (a wealth of
Census-related information by county, state,
and nation)
http://www.mla.org/census_compare&source=county
Modern Language Association (searchable data center
with Census
data on languages spoken and on
the numbers of speakers; these data are available by
age categories)
http://www.statehealthfacts.org/cgi-bin/healthfacts.cgi
Kaiser Family Foundation Health Facts (state and national
health facts including infant mortality,
HIV/AIDS, child and adult immunizations, cardiac disease,
and cancer)
http://www.nicwa.org/resources/factsheets/index.asp
National Indian Child Welfare Association (fact sheets
provide tribal information by state and
regional contacts)
http://www.uscis.gov/graphics/shared/statistics/data/DSLPR04s.htm
U.S. Department of Homeland Security, Office of
Immigration Statistics
(information on legal
permanent residents)
http://www.uscis.gov/graphics/shared/statistics/yearbook/index.htm
U.S. Department of Homeland Security, Office
of Immigration Statistics—Yearbook
of Immigration
Statistics (compendium of tables that provide data
on foreign nationals who, during a fiscal year,
were
granted lawful permanent residence [i.e.: admitted as immigrants or became legal permanent residents], were admitted into the United States
on a temporary basis [e.g.: tourists, students, or workers], applied for asylum or refugee status,
or were naturalized)
http://www.ers.usda.gov/statefacts
U.S. Department of Agriculture—State
Fact Sheets (provides statistics on urban and
rural
populations by state)
http://www.urban.org/publications/1000587.html
Urban Institute—Publications (provides
materials that report on the numbers and status
of
undocumented citizens in the United States)
Plan
Development
Disparities
and quality improvement: Federal policy levers. (2005, March-April),
by
Nicole Lurie,
Minna Jung, and Risa Lavizzo-Mourey,
Health Affairs, The Policy Journal of the Health
Sphere (Millwood),
Volume 24, No. 2, 354-364. Available from http://content.healthaffairs.org/cgi/content/full/24/2/354
Improving
Care for Children with Special Health Care Needs from
Diverse Cultural Backgrounds: An
Action Plan. (1999), by Theora Evans,
Ann Garwick, and Peggy Mann Rinehart. For more
information,
call National Maternal and Child Health Clearinghouse
at (888) 434-4624.
This monograph presents recommendations
and strategies on how to improve care for children
with
special health care needs from diverse
cultural
backgrounds.
Building
Cultural Competence: Guidelines for Action. (2001),
by the Washington Department of
Health; Multicultural Work Group.
For more information, contact Ruth Abad, Health
Educator, at
www.HEREinWA.org This resource was developed by the
Multicultural Work Group of the Washington Department
of Health. The group has worked since 1991
to integrate
cultural competency at program and
system levels. This resource documents their efforts
and provides examples of strategies
to operationalize
concepts of cultural competence in a meaningful
way for the health care staff and
to aid programs
with long-range planning in protecting
and improving the health of Washington state residents.
Building
Systems of Care: A Primer. (2002,
Spring), by Sheila Pires.
This primer is intended for use with
training in systems of care. It integrates concepts
of cultural
competence throughout the exploration
and planning of structures of systems of care. Available
from:
National Technical Assistance Center for
Children’s
Mental Health
Georgetown University Center for Child
and Human Development 3300 Whitehaven Street, N.W.,
Suite
3300
Box 571485
Washington, DC 20057-1485
Tel.: (202) 687-5000
Fax: (202) 687-8899
http://gucchd.georgetown.edu/research
Sponsoring Organization: Child, Adolescent
and Family Branch, Center for Mental Health
Services,
Substance Abuse and Mental Health Services Administration
(DHHS).
Crafting
Logic Models for Systems of
Care: Ideas into Action. (2003), by Mario Hernandez and
Sharon Hodges.
This monograph presents an introduction
to theories of change. It is designed to assist
mental
health Systems of Care stakeholders
in developing a logic model that will aid at all levels of
planning and implementation. It can be adapted
to use with diverse community
stakeholders for a more culturally competent organization
and to encourage the development
of culturally
relevant outcome measures. Developing a logic
model with a broad range of stakeholders
can
be part of an organizational cultural self-assessment
process. Available from
http://cfs.fmhi.usf.edu/cfsnews/cfsnewscategory.cfm?category=1
Cultural
Competency Strategic Planning Process: Narrative and
Appendices (HIV Client Services). (2001),
by the Washington State Department
of
Health. This report describes
a year-long process to develop a plan to
improve the cultural competence
of HIV Client Services, a small program of the Washington
State Department of Health.
Appendices outline the
strategic plan and provide background
documents (including
NCCC Policy Brief 1).
This report is available
with or without
appendices. For copies of
either version, contact: HIV
Client
Services, PO Box 47841, Olympia,
WA 98504-7841, (360) 236-3426.
Human
Resources
In the
Nation’s Compelling Interest:
Ensuring Diversity in the Health Care
Workforce. (2004),
by the Institute
of Medicine. Washington, DC: National
Academy Press. See www.nap.edu
Disparities
in Patient Experiences, Health Care Processes, and Outcomes:
The Role
of Patient-Provider
Racial, Ethnic, and Language Concordance. (2004),
by Lisa Cooper and
Neil Powe. This July 2004 report, supported by the
Commonwealth Fund,
reviewed the literature in racediscordant
relationships between physicians and patients
to determine whether
this factor had an effect on outcomes for the patient. “Race-discordant” means
when patients from ethnic groups are
treated by professionals from a different
ethnic
background. From the abstract: “The
research reviewed here documents ongoing
racial and
ethnic disparities in health
care and links patient/physician race
and ethnic concordance with higher patient
satisfaction and better health care processes.
Based on this
research, the authors issue the following recommendations:
1) health policy should be revised to
encourage workforce diversity by funding
programs that support the recruitment
of minority students
and medical faculty; 2) health systems should
optimize their providers’ ability
to establish rapport with minority patients
to
improve clinical
practice and health
care delivery; 3) cultural competency
training should be incorporated into
the education
of health professionals; and 4) future
research
should provide additional insight into the mechanisms
by which concordance of patient and physician
race, ethnicity, and language influences processes
and outcomes of care.” See publications
of the Commonwealth Fund available from
http://www.cmwf.org
Fostering
Diversity: Some Major Hurtles Remain, by Mary P. Rowe. This
brief contains
strategies to promote
and maintain diversity, particularly in academic settings.
See http://aad.english.ucsb.edu/docs/Change6.html
Promoting
Cultural Competence in Children’s
Mental Health Services. (1998), by Mario
Hernandez and
Mareasa R. Isaacs, from the Systems of
Care for Children’s
Mental Health Series, edited by Beth
Stroul and Robert Friedman.
This book focuses on the implications
of critical areas for growth of cultural
competence for
systems of
care in children’s mental health,
including, but not limited to (1) the
need to develop
organizational
infrastructures to support and enhance
cultural competence; and (2) recruitment,
retention,
and
training of staff. See bookstores such
as www.amazon.com
Recruiting
and Retaining Diverse Parent Representation
on Interagency
Councils. (2004),
by the National Early Childhood TA Center (NECTAC).
This brief presents
the recommendations of the NECTAC-sponsored meeting in Chapel
Hill
to discuss
cultural and linguistic diversity in early childhood
education. Although
it specifically
concerns parent members, this paper can be useful for
general recruitment
to achieve diverse representation” (Introductory letter
by Pascal Trohanis, Director of NECTAC). http://www.nectac.org/pubs/titlelist.asp
What
are Some Strategies for Recruiting and
Retaining a Diverse
Workforce? (2003),
by the Society for Human Resource Management.
This Web site offers
advice for recruiting and retaining diverse employees, compiling
suggestions
from
other sources.
It also has links to other
diversity and business
issues. http://www.shrm.org/diversity/recruitretain.asp
Clinical
Practice
Cultural
competence of nurse practitioner students: A consortium’s
experience. (2005, May), by Benkert R,
Tanner C, Guthrie B, Oakley D, Pohl
JM, Journal
of Nursing Education, Volume 44, No.
5, 225-233.
Improving
care and interactions with racially and ethnically diverse
populations in
healthcare
organizations. (2004, July-August), Reynolds
D., Journal
of Healthcare Management, Volume 49, No. 4,
237-249.
Social work
and the house of Islam: Orienting practitioners
to the beliefs and values of Muslims in the
United
States. (2005, April), by Hodge DR, Social Work, Volume 50,
No. 2,
162-173.
(Review)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15853193&query_hl=8
Cultural
issues in palliative care. (2005, February), by Kemp C, Seminars
in Oncology
Nursing,
Volume
21, No. 1, 44-52. (Review).
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15807056&query_hl=8 A course on the transition to adult care
of patients with childhood-onset chronic
illnesses.
(2005,
April), by Hagood JS, Lenker CV, Thrasher S,
Academic Medicine, Volume 80, No. 4,
352-355. (Review).
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15793019&query_hl=8
Enhancing
cultural competencies of advanced practice nurses: Health care
challenges
in
the twentyfirst
century. (2004, Fall), by Ndiwane A, Miller KH,
Bonner
A, Imperio K, Matzo M, McNeal G, Amertil N, Feldman Z, Journal
of
Cultural
Diversity, Volume 11, No. 3, 118-121.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15689146&query_hl=8
Cultural
caring in nursing practice: A meta-synthesis of qualitative
research. (2004, Fall), by Coffman
MJ,
Journal of Cultural Diversity, Volume 11, No. 3, 100-109. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15689144&query_hl=8
Cultural
competence now mainstream medicine. Responding to increasing
diversity
and changing demographics. (2004, December), by Cole PM, Postgraduate
Medicine, Volume 116, No. 6, 51-53.
(Review). http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15620127&query_hl=8
Agenda dissonance:
Immigrant Hispanic women’s
and providers’ assumptions
and expectations
for menopause healthcare. (2005, February),
by Esposito N, Clinical
Nursing Research, Volume
14, No. 1,
32-56.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_ui
ds=15604227&query_hl=8
Budget
Allocation
A Guide
to Developing and Using Performance
Measures in Results-Based Budgeting. (1997), by Mark
Friedman; The Finance Project.
This paper is part of a series of papers published by The
Finance Project on
the subject of results
accountability. A previous paper, A Strategy
Map for Results-Based Budgeting, embedded the challenge of
this paper of holding programs accountable
for the best possible performance, while ensuring that
their performance is aligned with, and supports, overall efforts
to improve
results, in other words,
how to create performance accountability within a results
framework.
Assessment
of the Total Benefits and Costs of Implementing Executive
Order 13166: Improving Access to Services for Persons with
Limited English
Proficiency. (2002, March 14), by the Office of Management
and
Budget (OMB), Report to Congress. This report by OMB reflects
that
Office’s
cost-benefit analysis of implementing
the contested Executive
Order (E.O.) 13166. Highlights: (1) calls
for clear and uniform standards for implementation,
(2) cites
substantial benefits to “improve
health and quality of life of many LEP
individuals
and families.
Moreover, language-assistance services
may increase the efficiency of distribution
of
government
services to LEP individuals and may measurably
increase the effectiveness of public
health and safety
programs,” (3) encourages a focus
on Spanish language as the most frequent
language
spoken
in the
United States other than English, (4)
predicts that provision of language services
will be
most costly
for the healthcare sector, and (5) estimates
a cost between $1 billion and $2 billion
to implement E.O.
13166. See http://www.omb.gov/inforeg/regpol.html
Shortchanging
America’s Health:
A State-by-State Look at How Federal
Public Health Dollars
are Spent. (2005),
by the Trust for America’s
Health. The Robert
Wood Johnson Foundation
sponsored
a report just released
(February 7, 2005)
that
gives information,
by state, on (1) the
difference
between dollars spent
on medical care/treatment
versus health promotion;
(2) defines the Federal
agencies that have
a role in public health
(hint: the
total is surprising);
(3) charts per state
give
percentage of *adults*
with asthma, diabetes,
obesity, cancer, heart
disease, West Nile
disease, AIDS; *children*
with asthma, overweight,
fully immunized,
infant mortality,
rate of Low Birth Weight
CDC funds
per line item of cancer
prevention; chronic
disease prevention/health
promotion; diabetes
control;
environmental health;
HIV prevention; immunization;
infectious disease,
with totals and per
capita
as well as state rank;
(4) bio-terrorism preparedness
spending from the CDC
and HRSA and the totals;
(5) HRSA spending
from Ryan White, Maternal
and
Child Health Block
grant; and Health Professionals
Grant; and (6) the
number of primary care
health
professions shortage
areas. See http://healthyamericans.org/reports/budget05/
Role
of the Planning Process
The Role
of Self-Assessment in Achieving
Cultural Competence.
(2001), by Tawara Goode. Available
for direct download
from the NCCC Web site
at http://gucchd.georgetown.edu/nccc/documents/
selfassessment.pdf
The Cultural
Competence Self Assessment
Protocol for Health
Care Organizations
and Systems, developed by Dennis Andrulis,
Thomas
Delbanco, Laura Avakian, and Yoku Shaw-Taylor.
Available
from http://erc.msh.org/mainpage.cfm?file=9.1g.htm&module=provider&language=English
A Manager’s Guide to Cultural
Competence Education for Health Care
Professionals. (2003),
edited by M.
Jean Gilbert and prepared for the California
Endowment. See http://www.calendow.org/reference/
publications/pdf/cultural/TCE0217-2003_A_Managers_Gui.pdf
Example of
a cultural competence plan from the California Department of
Mental Health
(includes administration goals and structures). See http://www.uacc4families.org/documents/
CultCompPlan-for-LTCS.pdf
Health sector
reform and public sector health worker motivation: A conceptual
framework. (2002,
April), by L. M. Franco, S. Bennett, and R. Kanfer, Social
Science Medicine,
Volume 54, No. 8, 1255-1266.
Creating
an Internal Management Structure for the Process
The NCCC
Policy Brief
series discusses organizational structures
as a key part of cultural and linguistic competence. These
policy briefs
are available at http://gucchd.georgetown.edu/nccc/ products.html
There is
some general information on
establishing a diversity committee at
http://www.casanet.org/program-management/diversity/cultural-competence.htm
The Director’s Query, a report
on the results of interviews of State
Title V Directors,
will be available
from the NCCC Web site in 2005/2006.
This report will contain information
on the different
internal
structures some State Title V Directors
are using to infuse cultural and linguistic
competence
at all
levels of their organizations.
The Contra
Costa Health Services for Contra Costa County in California
(see
www.cchealth.org)
developed an organizational plan to address health
disparities by infusing cultural and linguistic
competence. See Reducing Health Disparities: Diversity & Cultural
and Linguistic Competence.
Available online at http://www.cchealth.org/topics/publications/pdf/
reducing_health_disparities_article_nov03.pdf
Office of
Multicultural Services, South Carolina Department of Mental
Health, developed
a cultural competence plan, which is available online
at http://www.state.sc.us/dmh/cultural_competence/ cultural_plan.htm
Identifying
Fiscal and Personnel Resources
Assessment
of the Total Benefits and Costs of
Implementing Executive Order 13166: Improving Access to
Services for Persons with Limited English Proficiency, by
OMB. Report to Congress.
See http://www.omb.gov/inforeg/regpol.html
Pay now or
pay later: Providing interpreter services in health care. (2005,
March-April),
by L. Ku, G.
Flores; Center on Budget and Policy Priorities, Health Affairs:
The Policy Journal of
the Sphere (Millwood),
Volume 24, No. 2, 435-444. Federal civil rights policy obligates
health care providers to supply language
services, but wide gaps
persist because insurers typically do not pay for interpreters,
among other
reasons. Health care
financing policies should reinforce existing medical research
and legal policies:
Payers, including Medicaid, Medicare, and private insurers,
should develop mechanisms to pay for
interpretation
services for patients who speak limited English” Excerpt
from abstract. Available from http://content.healthaffairs.org
Reducing
disparities through culturally competent health care:
An analysis of the business case. (2002, Summer), by C. Brach
and I. Fraser,
Quality Management in Health Care, Volume 10,
No. 4, 15-28.
The Role
of Self-Assessment in Achieving
Cultural Competence. (2001), by Tawara Goode.
This is an excerpt from the Cultural Competence Exchange newsletter
of 2001
that identifies fiscal and
resource benefits of self-assessment by identifying and utilizing
current
staff knowledge and skills
more effectively, for example, those with multiple language
skills, experience,
and credibility with
communities. Available directly from the NCCC Web site at
http://gucchd.georgetown.edu/nccc/
documents/selfassessment.pdf
|
Identifying
Collaborating Partners and Engaging Community Members
in the Process |
Policy
Brief 4: Engaging Communities to Realize the Vision of One
Hundred
Percent Access and Zero Health
Disparities: A Culturally Competent Approach. (2001), by Tawara
Goode. Available
for download directly from the NCCC Web site at http://gucchd.georgetown.edu/nccc/documents/ncccpolicy4.pdf
Bridging
the Cultural Divide in Health
Care Settings: The Essential Role of Cultural Broker Programs. (2003),
by Tawara Goode, Suganya Sockalingam, and Lisa
Lopez-Snyder. Available for download directly
from the NCCC Web site at http://gucchd.georgetown.edu/nccc/documents/
Cultural_Broker_Guide_English.pdf
The Contra
Costa Health Department
developed a guide for community building, Healthy
Neighborhoods Project: A Guide for Community Building and
Mobilizing Around Health (1.3MB PDF, 102pp.).
This guidebook presents a strategy that
health departments and other agencies can use
to improve
community health. It presents the asset-based,
community-building model of the Healthy
Neighborhoods Project and how it has been implemented
in Contra Costa County.
Keys
to Access: Encouraging the Use of Mediation
by Families From Diverse Backgrounds. (1999), by Anita
Engiles, Cathy Fromme, Diane LeResche, and Philip Moses; Consortium
for Appropriate
Dispute
Resolution in Special Education.
This resource, designed for professionals in special education,
provides guidance on understanding “ why some families
may not participate in mediation, and strategies for increasing
the participation
from diverse backgrounds...practical recommendations.
to develop the knowledge, positive attitudes,
skills and strengths necessary for genuine collaboration” (p.
3). http://www.directionservice.org/
cadre/audio55.cfm
Community-based
research partnerships: challenges and opportunities. (2005,
June), by M. Minkler,
Journal of Urban Health, Volume 82, No. 2, Suppl.
2, ii3-ii12. Epub 2005, May 11. Abstract: “The complexity of many
urban health problems often makes them
ill suited
to traditional
research approaches and interventions.
The resultant frustration, together with
community
calls for
genuine partnership in the research process,
has highlighted the importance of an
alternative
paradigm. Community-based participatory research
(CBPR) is presented as a promising collaborative
approach that combines systematic inquiry, participation,
and action to address urban health
problems. Following a brief review of
its basic tenets and historical roots,
key ways in which
CBPR
adds value to urban health research are
introduced and illustrated. Case study
examples from diverse
international settings are used to illustrate
some of the difficult ethical challenges
that may arise in the
course of CBPR partnership approaches.
The concepts of partnership synergy and
cultural
humility,
together with protocols such as Green et al._s
guidelines for appraising CBPR projects,
are highlighted
as useful tools for urban health researchers
seeking to apply this collaborative approach
and to deal
effectively with the difficult ethical
challenges it can present.” See
http://www.ncbi.nlm.nih.gov/
entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=15888635&dopt=Abstract
Building
on leadership and social capital to create change in
2 urban communities. (2005, April), by S. A. Farquhar, Y.
L. Michael, and N.
Wiggins, American Journal of
Public Health, Volume 95, No. 4, 596-601. This project addressed
health disparities
in the African American and Latino communities
by enhancing community-level social capital.
The article contains “specific
examples of how this
intervention uses community health workers
and popular education to reduce language
and cultural
barriers and enhance community social capital.
Although the communities share fundamental
challenges related to health disparities,
the
ways in which the Latino and African
American
communities identify health concerns, create
solutions, and think about social capital
vary” (Abstract).
Using
community-based participatory research methods to reach
women with health messages: Results from the North Carolina
BEAUTY and Health
Pilot Project. (2005, April),
by L. A. Linnan, Y. O. Ferguson, Y. Wasilewski, A. M. Lee,
J. Yang, F. Solomon,
and M. Katz, Health Promotion Practice, Volume 6,
No. 2, 164-173.
This study used a community-based participatory research approach
to recruit and train
five licensed cosmetologists from two beauty salons to
deliver health promotion messages to their customers.“ At
12 months, 55% of customers reported making changes in their
health because of the conversations
they had with their cosmetologist. Customers who spoke more
often with their cosmetologists
about health also reported a higher percentage
of self-reported behavior changes. It appears
that trained licensed cosmetologists are effective
in promoting health messages to their customers” (Abstract).
See http://hpp.sagepub.com/cgi/content/abstract/6/2/164
Community
Engagement in Public Health. (2006, March), by Mary Anne Morgan
and Jennifer
Lifshay. This paper introduces a conceptual framework
for community engagement in public health. It
highlights the examples of the Contra Costa (California) Health
Services’ community
engagement program. See http://www.cchealth.org/topics/publications/pdf/community_engagement_in_ph.pdf
|
Planning
and Conducting Consumer Focus Groups |
A
New Use for Focus Groups—Building and
Empowering a Culturally Diverse Team. (1996, November-
December), by Sandra Hellman and Lynn Baker, Best Practices
and Benchmarking
in Healthcare,
Volume 1, No. 6, 297-300.
Community-Based
Participatory
Research. (2004, July), by the Agency for
Healthcare Research and Quality (AHRQ); Evidence-Based
Practice Program. [Full citation: Viswanathan M, Ammerman A, Eng E, Gartlehner G, Lohr KN, Griffith D, Rhodes S, Samuel-Hodge C, Maty S, Lux, L, Webb L, Sutton SF, Swinson T, Jackman A, Whitener L. Community- Based Participatory Research: Assessing the Evidence. Evidence Report/Technology Assessment No. 99 (Prepared by RTI-University of North Carolina Evidence-based Practice Center under Contract No. 290-02-0016). AHRQ Publication 04-E022-2. Rockville, MD: Agency for Healthcare Research and Quality. July 2004.]
Families
as
Full
Research
Partners:
What’s in it for Us?
(1999, August), by Ann Vander Stoep, Marilynn
Williams, Robert Jones, Linda Green, and Eric Trupin, Journal
of Behavioral Health Services & Research,
Volume
26,
No.
3,
329-344.
Hearing their
Voices: Lessons from the Breast and Cervical Cancer Prevention
and Treatment Act (BCCPTA),
Focus Group Findings from California. (2004, Fall), by the
Kaiser Family Foundation.
See http://www.kff.org/womenshealth/7146.cfm
Mexican-Origin
Children’s Health in Cultural Context. (2005),
by Lauren Clark; University of Colorado
Health Sciences Center.
This article is an example of a “focused ethnography” intended
to describe the cultural context of
“
child health production activities” for the benefit of
nurses assisting Mexican-origin families. Study
structures include home visits, unstructured interviews, photographs,
and focus groups with different
stakeholders, including a grandmother group, a friends/sisters
of mothers group, and a health care
professionals group. See http://156.40.88.3/cpr/dbs/res_mexican.htm
Responsible
Research with Communities: Participatory Research in Primary
Care: A Policy Statement. (1998),
by N. Gibson (Editor). This is a policy statement on participatory
research at the North
American Primary Care Research Group (NAPCRG) Annual Membership
Meeting. http://napcrg.org/exec.html
|
Developing
Guidelines for Data Analysis and Report Development |
W.K.
Kellogg Foundation Evaluation Handbook. (1998), by W.K.
Kellogg Foundation, Call (800) 819-9997
for a free copy. This handbook was designed by the Kellogg
Foundation staff in
order to make evaluation techniques more useful to organizational
and program development. According
to the introduction, this handbook “provides a framework for thinking about evaluation
and outlines a blueprint for designing
and conducting evaluations, either independently or with the
support of an external
evaluator/consultant.” The process explicitly calls for
addressing “real issues” in
the
community
and
creating
a
participatory
process.
When
infused
with
principles
of
cultural
and
linguistic
competence,
this
tool
can
be
used
to
evaluate
health
and
mental
health
systems
for
the
diversity
that
exists
in
the
United
States.
Step
into my zapatos, doc: Understanding and reducing communication
disparities
in the multicultural
informed consent setting. (2005, Winter), by C. M. Simon and
E. D. Kodish, Perspectives in Biology and Medicine, Volume
48, 1 Suppl., S123-138.
Abstract: “Current informed consent standards are aimed
at promoting an equitable and ethical
environment for conducting research across diverse patient populations.
This paper explores the
possible effects of ethnicity and culture on the consent process
for pediatric cancer clinical trials.
Informed consent discussions were observed, recorded, transcribed,
and coded. Question asking by
parents and clinician/parent word ratios were used to create
an interactivity measure, or “I-score.”
Visual analog scales were used to rate the clarity of specific
explanations. Cases were sorted into two
groups on the basis of parents’ self-reported ethnicity:
Caucasian (n=79, 56%) and minority
(predominantly Latino) parents (n=61, 44%). Chi-square and t-tests
were used to compare the groups.
A series of logistic regression analyses (controlling for ethnicity
and SES) were run for variables that
showed statistically significant differences (p < 0.05). Our
findings suggest that the content and quality
of the informed consent process is linked to parental ethnicity,
or clinician attitudes toward parental
ethnicity. These findings are discussed in terms of current perspectives
on culture and “cultural
competence” in health care. Further research is needed
to understand how cultural factors affect
outcomes such as parental understanding, decision making, mutual
trust, and satisfaction within the
informed consent process.”
Developing
a cultural competence assessment tool for people in recovery
from racial, ethnic and cultural
backgrounds: The journey, challenges and lessons learned. (2005, Winter), by T. E. Arthur, I. Reeves, O.
Morgan, L. J. Cornelius, N. C. Booker, J. Brathwaite, T. Tufano,
K. Allen, and I. Donato, Psychiatric Rehabilitation Journal,
Volume 28, No. 3, 243-250.
Abstract: “In 1997, Maryland implemented a new managed
care mental health system. Consumer
satisfaction, evaluation and cultural competency were considered
high priorities for the new system.
While standardized tools for measuring consumer satisfaction
were readily available, no validated,
reliable and standardized tool existed to measure the perception
of people from minority groups
receiving mental health services. The MHA*/MHP* Cultural Competency
Advisory Group (CCAG)
accepted the challenge of developing a consumer assessment tool
for cultural competency. The CCAG,
composed of people in recovery, clinicians and administrators
used their collective knowledge and
experiences to develop a 52-item tool that met standards for
validity and reliability. Consultation from
a researcher helped to further develop the tool into one possessing
tremendous potential for statewide
implementation within Maryland’s Public Mental Health System.
Recognizing the limitations of the
study and the need for further research, this instrument is a
work in progress. Strategies to improve
the instrument are currently underway with the Mental Hygiene
Administration’s Systems Evaluation
Center of the University of Maryland and several national researchers.”
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Developing
Suggested Best Practices for Disseminating the Results
of the Self-Assessment |
Promising
Practices Contra Costa County (in progress).
Infusing
Cultural & Linguistic Competence into Health Promotion
Training (DVD).
See http://gucchd.georgetown.edu/nccc/sidsdvd.html
Changing
Channels and Crisscrossing Cultures: A Survey of Latinos on
the News Media (2004), by Roberto
Suro; Pew Hispanic Center. From the Introduction: “This
report shows that the news media powerfully influence the
twin
processes of cultural change at work in the Hispanic population:
the assimilation of American attitudes and the formation
of a distinct ethnic identity. Even
as the English-language media purveys values and cultural
expressions drawn primarily from the experience
of the native born, the Spanishlanguage media reflects the
immigrant experience and reinforces ties to
the home country. Nearly half of the adult Hispanic population
crisscrosses between the two,
getting some of its news in both languages.” http://pewhispanic.org/reports/report.php?ReportID=27
The value
of engaging stakeholders in planning and implementing evaluations.
(2002, June), by A. Gilliam, D.
Davis, T. Barrington, R. Lacson, G. Uhl, and U. Phoenix, AIDS
Education and Prevention, Volume 14, No. 3, Suppl. A, 5-17.
Abstract: “Stakeholder participation in evaluation has
surfaced as a major factor contributing to the
effectiveness of HIV prevention programs. In recognition of the
multiple benefits, the Centers for
Disease Control and Prevention (CDC), has used a framework to
involve stakeholders in the
evaluation of its programs. This article describes the framework
used by the CDC and provides
examples of four studies that involved various stakeholders from
health departments, communitybased
organizations, and community planning groups to national and
regional organizations in
designing and implementing evaluations that yielded results useful
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